P-06-1249 Provide a clinical pathway, medical care, and specialists for people with Tourette’s syndrome in Wales
P-06-1249 Provide a clinical pathway, medical care, and specialists for people with Tourette’s syndrome in Wales
This
petition was submitted by Helen Reeves Graham, having collected a total of
10,393 signatures.
Text of Petition:
Tourette’s affects 1 in
100 children. It is not a rare condition. In Wales there is 1 specialist who
doesn't see children.
Tourette’s syndrome is a
neurological disorder that affects the nervous system and causes tics. Tics are
involuntary, sudden, and repetitive movements and sounds. Tourette’s syndrome
can be painful and debilitating.
Lots of people are unable
to get a diagnosis due to no pathway or get discharged the same day with no
ongoing medical care and support. Tourette’s isn't just swearing.
Additional Information:
Not getting medical care
and support can lead to long term mental health problems. People with
Tourette’s can have difficulties with anxiety, sleep, rage and social
isolation.
We NEED a proper, clear,
clinical pathway and access to specialist provision and medical care for people
with Tourette’s syndrome in Wales.
Status
This petition was
considered completed by the Petitions Committee at its meeting on 17/10/2022.
The Committee considered
the petition and noted the debate that took place earlier this year and the
recent announcement by the Deputy Minister for Social Services to develop a new
national improvement programme for neurodevelopmental conditions.
Considering this
announcement, the Committee congratulated the petitioner and all those who have
campaigned for appropriate services for those with Tourette’s syndrome in Wales
and closed the petition.
Full details of the
consideration of this petition by the Committee and related documents can be
seen on the Meetings tab above.
It was first considered by
the Petitions Committee on 25/04/2022.
Senedd Constituency and Region
- Preseli
Pembrokeshire
- Mid
and West Wales
- The Petitions Committee homepage
- View all open petitions
- View all petitions the committee is currently considering
- How the
petitions system works
Business type: Petition
Reason considered: Senedd Business;
First published: 21/02/2022