P-05-1106 Introduce Personal Health Budgets and Personalised Care in Wales
P-05-1106 Introduce Personal Health Budgets and Personalised Care in Wales
This
petition was submitted by Rhys Bowler having collected a total of 779
signatures.
Text of Petition:
Rhys has Duchenne Muscular
Dystrophy and lives in daily fear for his life, left alone for hours hoping the
ventilator he needs to breathe doesn't break. He must choose between poorly
funded social care and an NHS Continuing Healthcare package that takes away his
choice over who cares for him.
If Rhys lived in England
he would have a personal health budget, allowing him to use NHS Continuing
Healthcare while still being able to choose who cares for him. This is not
available in Wales
Additional Information:
I'm Rhys, 33 and living with Duchenne Muscular
Dystrophy in Pontypridd, Wales. I have extremely limited mobility and need a
ventilator to breathe.
I've employed my own care assistants for decades
and have a lot of experience of training and employing them. I've had bad experiences
using agencies and not having a say in who cares for me. I want to choose the
care assistants I want. I want to know who is coming in my home to help me with
my intimate personal care, and I want them to be people I trust and have
trained in how best to provide my care. Don't let my experience go to waste!
I want a Personal Health Budget so I can have both
24 hour care and a choice over who my care assistants are. This has been
available in England since 2014, it's time Wales took this seriously and
started giving people real choice and control about the care they receive.
This petition was considered completed by
the Petitions Committee at its meeting on 03/07/2023.
The
Committee considered the petition and congratulated the petitioner on his
successful campaigning over many years, Members welcomed the positive outcome
of the Welsh Government committing to introduce legislation to introduce direct
payments for continuing health care. Considering this Members agreed to close
the petition.
Full
details of the consideration of this petition by the Committee and related
documents can be seen on the Meetings tab above.
It was first considered by the Petitions Committee on 16/03/2021.
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Business type: Petition
Reason considered: Senedd Business;
Status: For consideration
First published: 19/01/2021