Cynulliad Cenedlaethol Cymru

National Assembly for Wales

Bil Awtistiaeth (Cymru) drafft

Draft Autism (Wales) Bill

Arolwg Ar-lein DAB66

Online Survey DAB66

Ymateb gan Cyfrannog ar-lein 66

Evidence from Online Participant 66

Please refer to questions in the Online Survey.

Question

Answer

01

Yes

02

Not sure

As an autistic individual if the focus is going to include other neurodevelopmental disorders the bill might be better called the Neurodivergent bill and autism would fall under that.

03

Yes

04

Yes

As an autistic individual I have personally experienced NHS trusts that treated me like a hypochondriac for suggesting I might have autism.

05

6 months seems to be a reasonable amount of time.

06

That seems a reasonable amount of time.

07

This would give everyone ample time to get to grips with the new law.

08

Anything done in relation to a medical condition should be done on the advice of professionals and reflect the most up to date findings.

09

Yes

Definitely. I was diagnosed around four years ago and I never had a follow up assessment so I've been left to figure things out on my own.

10

No

To guarantee the quality of the diagnosis process the list should be restrictive so that the team can only include people from that list. Examples and "Could" implies all of those people are optional.

12

Arbitrary terms such as "functioning levels". Functioning levels in an individual fluctuate so some dats a person may not "seem that autistic" and would be denied services aimed at what people would class as low functioning.

13

Yes

14

All of the above plus any other neurodevelopmental disorders we may have. Also ethnicity as diagnosis is disproportionately white.

15

Not sure

The list needs to be easily updateable but also compulsory.

16

Yes

As long as it is to serve a stated purpose and is relevant to that purpose.

17

It should happen all the time.

Our understanding of autism is constantly updating, raising awareness every three years can result in out of date information being out there for prolonged periods of time.

18

The Bill will be good for people. Currently the services you receive as an autistic individual can literally be dependant on the good will of the professional you are dealing with. This Bill will standardise the process and make it fair.

19

It could be good but as an autistic individual there are many organisations raising "awareness" that do so to demonise us and/or sell damaging "cures". The bill could do with safeguards and instructions that the awareness is to benefit the autistic indivi